DIY High Calorie Purees for Babies and Toddlers

Lots of store-bought baby purees with some additional add ons to create high calorie puree combinations

This post is the resource I wish I had found last year. High calorie purees, with macros, especially carbs, taken into careful consideration. As much as I thought I would do baby led weaning, Everett is 22 months old and still can’t feed himself. A store-bought puree or pouch just does not have enough calories to sustain him without making him rely too heavily on bottles for his daily needs. And if I tried to feed him two at a time, it’s too much volume and the carb count just causes huge spikes and crashes for his blood sugar. After searching for someone on the internet to tell me what to do, I finally just sat down with a spreadsheet and figured it out myself.

If I can help one mom (or dad, grandparent, or other caregiver) out there with this post, it will be so worth it to me! A child doesn’t need to have Down syndrome and Type 1 diabetes to have a need for higher calorie purees (and lower carbs possibly), it could be any child for several medical reasons; feeding tubes, texture aversions, etc. I’ll stop rambling and just get to the meat of the matter. Continue reading “DIY High Calorie Purees for Babies and Toddlers”

Decluttering as Disability Parents

A few weeks after Everett was diagnosed with Type 1 diabetes, I started following some minimalist accounts.  In that time, I’ve learned a lot about minimalism.  I’ve also been slowly building a list of so many reasons we should simplify our lives because we have a child with a disability.

This list has immediate benefits, as well as some long term, and even life after we are gone.  Yep, I am going there because it is something parents of children with disabilities have to think about, and do think about more often than you realize.

minimalist entryway Continue reading “Decluttering as Disability Parents”

22 Things I Learned in 2022 and My Hopes for 2023

2022 was without a doubt the hardest year of my life.  I got the idea for this post a few weeks ago and thought after the year we’ve had, it might be interesting to document.  I’m not holding anything back.  There has been a lot of stress, angst, and worry.  There have been happy tears and grief and disappointment.

22 things I learned in 2022

Continue reading “22 Things I Learned in 2022 and My Hopes for 2023”

A Day In The Life of a Type 1 Diabetes Parent

Oh boy has it been awhile since I posted last.  In May, Everett became our hospital’s youngest to be diagnosed with Type 1 diabetes at 8 months old.  If I’m being honest, the last four months have been hell regarding this autoimmune disease.  I was inspired a few times to document a day in the life and how many decisions we constantly make now that we are our son’s pancreas 24/7.  And I gave up before 10am every time.  But a few weeks ago, I did it.  I documented the entire day from midnight to midnight!

A Day In The Life of a Type 1 Diabetes Parent
Everett is sporting his continuous glucose monitor on his leg.

Continue reading “A Day In The Life of a Type 1 Diabetes Parent”

“Everyone Should Have a Choice”

A few weeks ago, I shared with someone who did not know of Everett’s Down syndrome diagnosis.  It took me a couple days to shake off the conversation but in light of World Down Syndrome Day, his words are once again ringing in my ears.

“Everyone should have a choice.”

I am quite certain my point across was misunderstood.  See, everyone currently does have a choice.  Continue reading ““Everyone Should Have a Choice””