Decluttering as Disability Parents

Posted on by Leah

A few weeks after Everett was diagnosed with Type 1 diabetes, I started following some minimalist accounts.  In that time, I’ve learned a lot about minimalism.  I’ve also been slowly building a list of so many reasons we should simplify our lives because we have a child with a disability.

This list has immediate benefits, as well as some long term, and even life after we are gone.  Yep, I am going there because it is something parents of children with disabilities have to think about, and do think about more often than you realize.

minimalist entryway Continue reading “Decluttering as Disability Parents” →

22 Things I Learned in 2022 and My Hopes for 2023

Posted on by Leah

2022 was without a doubt the hardest year of my life.  I got the idea for this post a few weeks ago and thought after the year we’ve had, it might be interesting to document.  I’m not holding anything back.  There has been a lot of stress, angst, and worry.  There have been happy tears and grief and disappointment.

22 things I learned in 2022

Continue reading “22 Things I Learned in 2022 and My Hopes for 2023” →

A Day In The Life of a Type 1 Diabetes Parent

Posted on by Leah

Oh boy has it been awhile since I posted last.  In May, Everett became our hospital’s youngest to be diagnosed with Type 1 diabetes at 8 months old.  If I’m being honest, the last four months have been hell regarding this autoimmune disease.  I was inspired a few times to document a day in the life and how many decisions we constantly make now that we are our son’s pancreas 24/7.  And I gave up before 10am every time.  But a few weeks ago, I did it.  I documented the entire day from midnight to midnight!

A Day In The Life of a Type 1 Diabetes Parent
Everett is sporting his continuous glucose monitor on his leg.

Continue reading “A Day In The Life of a Type 1 Diabetes Parent” →

“Everyone Should Have a Choice”

Posted on by Leah

A few weeks ago, I shared with someone who did not know of Everett’s Down syndrome diagnosis.  It took me a couple days to shake off the conversation but in light of World Down Syndrome Day, his words are once again ringing in my ears.

“Everyone should have a choice.”

I am quite certain my point across was misunderstood.  See, everyone currently does have a choice.  Continue reading ““Everyone Should Have a Choice”” →

What I Want You to Know About Down syndrome

Posted on by Leah

When Everett was a few hours old, the hospital pediatrician said he had some soft markers for Down syndrome and wanted to test him.  The waiting period was some of the hardest days I’ve lived through.  After the diagnosis, I had so many questions.  I read, I learned, and there is so much that I didn’t know that I am guessing you don’t either.  Here are the “big hitters,” if you will, that I think everyone should know.

Continue reading “What I Want You to Know About Down syndrome” →